Mobilisation Monday…

OK so I woke up in my hospital bed although I hadn’t slept much. I was becoming familiar with my new surroundings. The nurses and assistants are all lovely and someone got me some tea and toast for breakfast which was nice. The lady who brought my tray then took my order for lunch and I must say it was a great menu. I don’t eat dairy or meat but had resigned myself to eating anything so I was pleasantly surprised🍝🍲🍛

After breakfast the haematology team came to see me; consultant, registrar and another doctor. They explained everything that was going to happen and I had plenty of time to ask any questions. I found them approachable and knowledgeable, kind and friendly.

Then the real fun began. I needed two cannulas (one in each arm) for all the various IVs that were coming down the tracks. Unfortunately my veins were not very cooperative and it took several attempts and a false start to get sorted. The two nurses and doctor were very supportive and positive throughout. But it took a few hours so chemo was delayed a bit. I can’t be sure but I think I had an IV of fluids and then fluid + Mesna to hydrate me and protect the lining of my bladder.

Then came the joy of catheterisation 😁 Now I have had a catheter before when I gave birth to my daughter, but I had an epidural so it was a walk in the park. This time I wasn’t so lucky. Two nurses attempted several times to no avail and apparently if a third person can’t get it in then you can’t have one. Anyway the third nurse succeeded. Because I was being given so much fluid, the catheter was great as I wasn’t needing the loo all of the time and my output could be measured accurately. However, I didn’t find it comfortable and won’t look forward to having it next time. For any of you gritting your teeth while reading this post, bear in mind that for most people catheters and cannulation won’t be an issue! I’ve always been awkward😉

So finally it was time to be hooked up to the superhero cyclophosphamide. I was nervous and excited when the IV was put up and I was told it would take about one hour. In an effort to be positive I imagined the cytotoxic chemical running through my veins and blasting my dodgy immune cells. Well it must have been doing some serious blasting 🔫🔫🔫, because after 20 minutes I developed severe stinging pain in my eyes, nose, sinuses and scalp. A doctor was immediately informed and checked that I wasn’t having an allergic reaction. The drip was halted for ten minutes and when it was restarted they doubled the remaining time period. This strategy was successful and the rest of the infusion finished without any further drama. I should mention also that my obs (BP, sat level and temp) were measured numerous times throughout the day.

Later I ate all my dinner, celebrating inside that I had finally begun. My hubby had been by my side all day and a visit from my sister and two cousins rounded off the day with a laugh😆 Bring on tomorrow!

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